MY TOOLS AND LYME RESOURCES
This page is a collection of Lyme disease and chronic illness resources I have personally used, explored, or come across in my journey. So far, nothing has significantly made an impact for me individually, but what has not worked for me does not mean it could not work for you.
This page includes educational organizations, physician directories, testing laboratories, financial assistance programs, symptom resources, and research centers.
Nothing here is medical advice. Lyme disease presents differently in every person, and testing and treatment should always be guided by a qualified healthcare provider.
This is simply a living resource hub to help others find direction, support, and clarity.
IF YOU BELIEVE I AM MISSING A RESOURCE, PLEASE LET ME KNOW.
1. Core Lyme Education + Advocacy Organizations
These are foundational organizations for understanding Lyme disease and tick-borne illness:
ILADS (International Lyme and Associated Diseases Society)
https://www.ilads.orgLymeDisease.org
https://www.lymedisease.orgGlobal Lyme Alliance (GLA)
https://www.globallymealliance.orgBay Area Lyme Foundation
https://www.bayarealyme.orgProject Lyme
https://www.projectlyme.orgLyme Disease Association
https://www.lymediseaseassociation.org
2. Finding a Lyme-Literate Doctor (LLMD / LLMD Directory Resources)
These directories help locate clinicians experienced in tick-borne illness:
ILADS Physician Directory
https://www.ilads.org/patient-care/provider-search/LymeDisease.org Physician Search
https://www.lymedisease.org/find-a-lyme-literate-doctor/Global Lyme Alliance Provider Finder
https://www.globallymealliance.org/lyme-specialist-searchProject Lyme Physician Directory
https://www.projectlyme.org/physician-search/PA Lyme Resource Network Referral Program
https://www.palyme.org/referrals/Generation Lyme Doctor Finder (aggregated directories)
https://www.genlyme.org/find-a-doctor
3. Lyme Testing Laboratories
These labs are frequently used in tick-borne illness evaluation (must be ordered by a provider in most cases):
IGeneX Laboratory
https://igenex.comGalaxy Diagnostics
https://www.galaxydx.comArminLabs
https://arminlabs.comVibrant Wellness
https://www.vibrant-wellness.comMedical Diagnostic Laboratories
https://www.mdlab.comDNA Connexions
https://dnaconnexions.comMy dear friend and LCSW, Diana Cust, on my support page offers testing through her site with no appointment or additional cost. Just cost for the testing through Vibrant Wellness.
4. Tick-Borne Disease Research Centers
These institutions are leading research in Lyme and co-infections:
Johns Hopkins Lyme Disease Research Center
https://www.hopkinslyme.orgColumbia University Lyme & Tick-Borne Disease Center
https://www.columbia-lyme.orgNational Institutes of Health
https://www.niaid.nih.gov/diseases-conditions/lyme-diseaseBay Area Lyme Diagnostics Research Initiative
https://www.bayarealyme.org/research
5. Symptom Tracking + Diagnostic Support Tools
Helpful for organizing symptoms and advocating for care:
LymeDisease.org MyLymeData Registry
https://www.lymedisease.org/mylymedataIGeneX Symptom Checker Tool
https://igenex.comGlobal Lyme Alliance Symptom Resource Library
https://www.globallymealliance.org/lyme-symptomsCDC Lyme Disease Symptom Overview
https://www.cdc.gov/lyme/signs-symptoms/index.html
6. Financial Assistance + Scholarships + Patient Support
LivLyme Foundation (financial grants for children + families)
https://livlymefoundation.orgGlobal Lyme Alliance Patient Support Programs
https://www.globallymealliance.org/lyme-patient-supportLyme Disease Association Assistance Programs
https://www.lymediseaseassociation.orgHelp Stop the Epidemic (regional support grants in some states)
https://www.helpstoptheepidemic.orgUnited Way 211 (local healthcare financial resources)
https://www.211.orgThe Lyme Love Project (https://dropcreativeshop.com/pages/lyme-love-project?srsltid=AfmBOor2q3_5Gxhfy7zVdgpOVvcqbPn-sTXiFlnHfh7RIUQzpvAQzNSB
7. Prevention + Tick Awareness
CDC Tick-Borne Disease Prevention
https://www.cdc.gov/lymeTickEncounter Resource Center
https://tickencounter.orgBay Area Lyme Tick Resources
https://www.bayarealyme.org/ticks
8. Community + Support Networks
Global Lyme Alliance Peer Mentorship Program
Facebook Lyme Disease Support Groups (various regional + global groups)
Reddit communities (r/Lyme, r/lymedisease — use with discernment)
Project Lyme community forums
Local Lyme support groups via state Lyme associations
9. Symptom “Check / Screening” Tools (NOT diagnostic)
Important wording for your site:
IGeneX symptom checker (educational screening tool)
CDC symptom checklist
Global Lyme Alliance symptom overview tool
Here is a collection of treatments, protocols, and supportive modalities I have personally used or gone through during my Lyme disease and complex chronic illness journey:
Conventional medical care across multiple specialties (neurology, cardiology, rheumatology, infectious disease, primary care, etc.)
Emergency medical care and acute intervention settings
Lyme-literate and integrative medical treatment approaches
PICC line intravenous antibiotic therapy
Intravenous therapies (including nutrient and antimicrobial-based infusions)
Ozone and UVBI Ozone
Anti-inflammatory approaches both environmental and nutritional
Hyperbaric Oxygen Therapy
IV Silver
Nutrition therapy
Blood transfusions
Psychedelic Assisted Therapy (Ketamine)
Herbal antimicrobial protocols, including Cowden Protocol
Homeopathic treatment approaches
Mold and mycotoxin-focused treatment protocols
Detoxification and binding protocols (drainage and toxin support systems)
Infrared sauna therapy
Red light therapy
Firefly laser
Dry brushing and lymphatic support practices
Castor oil packs
Oral prescriptions and antibiotics
Acupuncture
Massage therapy
Physical therapy
Personal training (modified and symptom-dependent)
Neurohealth-focused treatment approaches
Muscle testing
Biofeedback therapy
EMDR therapy
Psychotherapy
EFT (Emotional Freedom Technique, including Brad Yates-style practices)
Dynamic Neural Retraining Program (DNRS)
Primal Trust nervous system healing program
Yoga (including guided practices such as Yoga with Kassandra)
Meditation practices
Sound bath therapy
Gut healing and microbiome restoration protocols
Dietary interventions including GAPS diet, ketogenic diet, low FODMAP diet, etc.
Targeted gut and digestive support protocols
Nervous system regulation and retraining work
Autonomic nervous system support strategies for dysregulation and POTS
Cardiovascular monitoring and supportive cardiac care approaches
Neurological and neuroinflammation-focused treatment approaches
Environmental medicine strategies (mold avoidance and toxin reduction in home/lifestyle)
Energy pacing and chronic fatigue–based recovery strategies
Continuous self-tracking, symptom mapping, and data-driven medical advocacy
and more..